Terms & Conditions

Terms, Conditions and Waivers.

and Conditions for Your Privacy

Membership of this site is for members suffering from Cauda Equina Syndrome, their carers, family or friends or

anyone with an interest in this Rare Disorder, as well as those who care about a member's health and welfare who

suffer from it, or just wish to know more.

At no time will we allow any abuse or improper conduct bullying of any sort on this site. The site has 24/7 observation

and any person or persons who do NOT abide by these rules will be asked to leave.  They will be automatically and 

immediatley removed and other relevant sites will be notified of such

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The site is a member site and all members wo suffer from CES, their Carers, family or friends may join but are

required to complete the registration form in full and submit all relevant information as requested on the relevant form.

Registration automatically entitles the member to the quarterly newsletter, which is delivered to the registered

email address on file. The site is an information and help format so, please advise us as soon as possible of any

changes to the information submitted when you register as a member.

 The privacy of our customer's data, and private information are important to us. We will at various times send an 

 E-Mail to make sure all your personal details and E-Mail details are are still current.  

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We will send the E-Mail with your Registered Code,

this will ensure you know it is NOT SPAM or a SCAMMER.

 It also ensures that you know it is a

genuine contact from:

Cauda Equina Syndrome Sufferers Global Support Group - New Zealand

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We guarantee that we  will not disclose or sell your customer data to any third party. We will only send you

E-mail newsletters if you explicitly opt in or should we be seeking to verify your details. If  we advertise  the availibility

for the purchase of any material such as Leaflets, Books, Research Papers or refer you to partner sites for this

process, you will always have Individual control and other information are core principles of the,

Cauda Equina Syndrome Sufferers Global Support Group - New Zealand  We respect and protect the privacy of people

who use the website  www.caudaequinassg.nz

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What Information Do We Collect?

Cauda Equina Syndrome  Sufferers Global Support Group - New Zealand, only collects unique information about you

when you specifically and knowingly provide such information, for example, at the time of registration, we collect your

email address and information as per our registration form, we also archive the content from posts on our Blog or

comments made. You are encouraged to remember your E-Mail and password we provide at the time 

of registration, and as it a generated number unique to your details, and is encoded, it cannot be an easily identifiable

password.  Although we do require items such as your name, but this is never released to anyone even

other members. Unless expressly requested by you via an email. Within that E-mail your password must be in the

subject line, and we will only receive E-mails for this purpose via genesislife55@gmail.com   

By using this email address our system can immediately verify your membership and code number as legitamate.

"Please make sure your code is in the subject line"

By providing personal details you are consenting to their use in accordance with the intent of this policy, and

these Terms of Service of: Cauda Equina Syndrome Sufferers Global Support Group - New Zealand 

 Such personal information will be used to identify you as a unique user, and the information will not be shared with

any other entity or organization or member, unless you have specifically requested us to do so in writing or we are

required to do so by law.

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How your information is used?

Cauda Equina Syndrome Support Group - New Zealand, uses data that you share on the platform in several ways,

according to the sensitivity of the information and your privacy settings:Statistics: aggregate demographic, health, and

usage data may be shared publiclyand included in presentations and reports.

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Examples:

Number of users in a Cauda Equina Group Globally;  Average number of posts per user; Location information where

traffic originates from; and Number of visitors on the site and number of visits. Textual content you share with the site

may be sent to a third party translation service (such as Google Translate or Translators without Borders) over secured 

connection Examples:  Posts; Investigations, Research, Comments; Stories.

Cauda Equina SyndromeSufferers Global  Support Group - New Zealand  can be used to help you discover research

studies that may be of interest.These studies will be posted on the Our Blog/News page, and you will have the option of

opting-in. None of your information will be used for research without your permission.When you enter the site and

have registered you will be shown a sub-page forthese Terms and Conditions, It is not a requirement to register

but completing the registration form will help us keep statistics on the Cauda Equina disorder forfuture reference.

(This will NOT include your details).. You will have to completen the registration form if you wish to

be included or eligible to participate in the research and Invetiigation studies carried out for Cauda Equina Syndrome

You will then have to consent to the terms of individual studies before being able to participate.  

The data you enter through the Research Studies will be stored on a separate server from your personal data held by 

Cauda Equina Syndrome Sufferers Global Support Group - New Zealand. profile, to decrease the chances of you being

identified incase of a security breach, although we have fail safe components in place that prevent this occurence, due

to the Intertnet being suseptible to "Hacking" a 100% cannot  be given by Cauda Equina Syndrome Sufferers Global

Support Group - New Zealand. 

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User Experience

We use your preferences in your Account Settings to better your user experience at

Cauda Equina Syndrome  Sufferers Global Support Group - New Zealand.

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For Example,

In order to better tailor your community interaction.we send email notificaions based on your preferences.

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Quality Control

Cauda Equina Syndrome Support Group - New Zealand  administrators may monitor site usage and content to improve

the platform, fight spam, find bugs, and ensure behaviour adheres to the site’s Terms of Service.

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Examples

IP history;Site interactions;Error reports, and,User feedback.

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Your Activity

Cauda Equina SyndromeSufferers Global Support Group-NZUses Google Analytics and an application known as

"Local Storage" Local storage is used to keep login sessions alive and to record the content contributions of logged-in

users:  posting, commenting, flagging, editing posts, joining  etc.  If your system does not support this service

then Cookies store small amounts of data on your computer about your visit to our site.

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Data Security

We take data protection seriously. This site has as stated security measures in place to protect the loss, misuse and

alteration of the information in our control. Despite the mechanisms in  place to keep all information  secure and to

protect your privacy, there is always a risk of a privacy breach. If a privacy breach occurs,

Cauda Equina Syndrome  Sufferers Global Support Group - New Zealand. will take immediate steps to contain

the breach, and contact you as soon as reasonably possible in order to inform you of the breach, explain what data

may have been compromised and suggest steps you might consider taking in order to secure your personal

information. Cauda Equina Syndrome Sufferers Global Support Group - New Zealand  is not responsible for

the privacy practices or the content of web sites external to the domain “caudaequinassg.nz”.

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Exporting your information

You can request  a copy of your posted content from  Cauda Equina SyndromeSufferers Global Support Group   

New Zealand  If you want to back it up or use it outside of  Cauda Equina Syndrome Sufferers Global Support Group

- New Zealand  at any time. This can be done by simply filling out a request form on the registration page.

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Deleting or Unsuscribing 

You can delete your account if you wish. This can be done by using the registration form and complete the section

at the bottom of the form. Please remember that anything you have posted may have been copied/quoted by others

and used in their posts. As such, it may be impossible to delete everything that you have ever posted

on  Cauda Equina Syndrome Sufferers Global Support Group - New Zealand. If you have any questions about this

deleting content, you may contact the Administrator of the website via

genesislife55@gmail.com  or  info.ces.nz@gmail.com

We are committed to data protection We will continue to review our privacy policy and will notify you of

any significant changes. We encourage you to periodically review this policy for the latest information on our

privacy practices.

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Who can I ask if I have additional questions?

If you have any questions about this privacy statement, the practices of this site, or your dealings with this

website, Please contact  us by the E-mail addresses shown above or use form below.               

                                                                                                                                                                   

                                                                                                                                                                                                                                  

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